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End of life care and support services in Leicestershire and Rutland

Leicestershire and Rutland County Councils are seeking your views to help assess end of life and bereavement services as part of our joint strategic needs assessment (JSNA).

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This consultation runs from 8 June to 6 July 2022.

Note: This survey is separate to the National Audit of Care at the End of Life (NACEL) in hospitals survey.

Next of kin may receive an additional invitation to complete another survey for deaths which occurred in hospital between 1 June and 31 August.

Your views will help us to assess the current and future health and social care needs for local people in this stage of life and can be used to improve how the councils provide health and social care services for residents.

As part of this work, we have developed a survey to help better understand the experiences and priorities of those who:

  • have experienced a bereavement within the past 3 years
  • either currently or have previously been a carer for a friend or family member nearing the end of life
  • currently work as a formal carer for someone approaching the end of life, or in end of life/palliative care services

As well as contributing to the JSNA, feedback that we receive may be used by Leicestershire and Rutland County Councils in other pieces of work aimed at improving the support available for those nearing the end of life, their loved ones, and those delivering care.   

Your responses will be stored in line with the Data Protection Act 2018. Where you have shared your experiences, responses may be used in the JSNA chapters and other work in the form of anonymous quotes to help illustrate key issues that have been highlighted through this piece of engagement.

We recognise that this survey covers sensitive and emotional subjects, so please feel free to stop and leave the survey at any time (please note though that you will be unable to save your progress if leaving the survey). If you feel that you require support, please consider visiting the Dying Matters website which provides a wealth of information on matters relating to topics discussed in this survey. This includes providing contact details for sources of carer and bereavement support.  

Let us know your views

This survey will run for 4 weeks, from 8 June to 6 July. Responses will be used to help inform the JSNA on End of Life and may be included in the finished documents in the form of anonymous quotes to help illustrate key issues.

Complete the survey online 

For questions about this survey, or if you require a paper copy, please email PHPool@leics.gov.uk or call 0116 305 0705.

What happens next

We aim to complete the JSNA on 'End of Life' by Autumn 2022, after which they will be made publicly available.

Data Protection

Personal data supplied on this form will be held on computer and will be used in accordance with current data protection legislation. The information you provide will be used for statistical analysis, management, planning and the provision of services by the county council and its partners. Leicestershire County Council and Rutland County Council will not share any personal information collected in this survey with their partners. The information will be held in accordance with the council’s records management and retention policy. Information which is not in the ‘About you’ section of the questionnaire may be subject to disclosure under the Freedom of Information Act 2000.

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