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Huntington's Disease Association (HDA)

Our team of Specialist Huntington's Disease Advisers are here to help you - they can provide information, advice and support on all aspects of Huntington's disease.  All our specialist advisers are experienced and compassionate care management professionals. We understand that whole families may need our support including

  • visiting people at home to provide practical help and emotional support
  • delivering our confidential telephone helpline service
  • coordinating support with medical, health and social care professionals
  • making referrals into specialist Huntington’s disease clinics
  • connecting younger family members with our Youth Engagement Service
  • giving support for sensitive end-of-life care
  • and much more

We have a specialist adviser dedicated to helping young people with Juvenile Huntington’s disease.

Services
Advice and support, Health and wellbeing
Location
Blaby, Charnwood, Derbyshire, Harborough, Hinckley and Bosworth, Melton, North West Leicestershire, Nottinghamshire
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